• FuglyDuck@lemmy.world
    link
    fedilink
    English
    arrow-up
    34
    ·
    15 hours ago

    UHG. this makes me ill.

    Particularly because I do not want to participate in medical studies without my consent. Unfortunately, your doctors have been filing your private health data in for study for a fairly long time.

    • AngrySquirrel@lemm.ee
      link
      fedilink
      arrow-up
      18
      ·
      edit-2
      15 hours ago

      This isn’t just about medical studies. They don’t need “a new disease registry” “to track Americans with autism” in order to do medical studies…

      In addition, a new disease registry is being launched to track Americans with autism, which will be integrated into the data.

      • FuglyDuck@lemmy.world
        link
        fedilink
        English
        arrow-up
        35
        ·
        15 hours ago

        It’s for using it to remove undesirables.

        RFK is a eugenics asswipe. He’s going to be using it to harm people.

        Which, way back when I got into this row with my ex-doctor, it was “I want to maintain control of my data, I don’t want people using it without me knowing or without my consent.”

        He laughed saying exactly this would never happen and I was being paranoid.

    • Ledericas@lemm.ee
      link
      fedilink
      English
      arrow-up
      2
      ·
      11 hours ago

      when a doctor sees you, even if nothing eventful goes in during the appoint, they have to write up a summary of your whole visit, if you ever get a chance to see your medical records, they will have pages and pages of you, even if you had a short visit, said certain symptoms that dont match.