mecfs@lemmy.worldMEnglish · edit-26 months agoNew Community, If you want to be added as mod, please askplus-squarepinmessage-squaremessage-square0fedilinkarrow-up12arrow-down10
arrow-up12arrow-down1message-squareNew Community, If you want to be added as mod, please askplus-squarepinmecfs@lemmy.worldMEnglish · edit-26 months agomessage-square0fedilink
LaunchesKayaks@lemmy.worldEnglish · 1 day agojust got approved for a hysterectomy!plus-squaremessage-squaremessage-square12fedilinkarrow-up166arrow-down10
arrow-up166arrow-down1message-squarejust got approved for a hysterectomy!plus-squareLaunchesKayaks@lemmy.worldEnglish · 1 day agomessage-square12fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 day agoToo Sick to Work but Too Healthy for Help - How Disability and Poverty Go Hand-in-Handplus-squaredawnlevitt.substack.comexternal-linkmessage-square1fedilinkarrow-up139arrow-down10
arrow-up139arrow-down1external-linkToo Sick to Work but Too Healthy for Help - How Disability and Poverty Go Hand-in-Handplus-squaredawnlevitt.substack.comFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 day agomessage-square1fedilink
graphito@sopuli.xyzMEnglish · 1 day agoSpooniebot. Understands when you don't have the spoonsplus-squarefiles.mastodon.socialimagemessage-square0fedilinkarrow-up117arrow-down12
arrow-up115arrow-down1imageSpooniebot. Understands when you don't have the spoonsplus-squarefiles.mastodon.socialgraphito@sopuli.xyzMEnglish · 1 day agomessage-square0fedilink
Binette@lemmy.mlEnglish · 2 days agoFeeling sad about not being able to do muchplus-squaremessage-squaremessage-square1fedilinkarrow-up136arrow-down11
arrow-up135arrow-down1message-squareFeeling sad about not being able to do muchplus-squareBinette@lemmy.mlEnglish · 2 days agomessage-square1fedilink
Björn Tantau@swg-empire.deEnglish · 3 days agoThursday Triumphsplus-squaremessage-squaremessage-square2fedilinkarrow-up117arrow-down10
arrow-up117arrow-down1message-squareThursday Triumphsplus-squareBjörn Tantau@swg-empire.deEnglish · 3 days agomessage-square2fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 11 days agoThe grief is hard, but easier than clinging onto unrealistic hope and living a life of disappointment.lemmy.blahaj.zoneimagemessage-square14fedilinkarrow-up1111arrow-down14
arrow-up1107arrow-down1imageThe grief is hard, but easier than clinging onto unrealistic hope and living a life of disappointment.lemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 11 days agomessage-square14fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · edit-213 days ago(Also becoming disabled sucks, in big part due to society barely helping)lemmy.blahaj.zoneimagemessage-square5fedilinkarrow-up1124arrow-down118
arrow-up1106arrow-down1image(Also becoming disabled sucks, in big part due to society barely helping)lemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · edit-213 days agomessage-square5fedilink
Björn Tantau@swg-empire.deEnglish · 14 days agoyou're just imagining it - A Chronic Illness Gameplus-squarenpckc.itch.ioexternal-linkmessage-square1fedilinkarrow-up135arrow-down11
arrow-up134arrow-down1external-linkyou're just imagining it - A Chronic Illness Gameplus-squarenpckc.itch.ioBjörn Tantau@swg-empire.deEnglish · 14 days agomessage-square1fedilink
Björn Tantau@swg-empire.deEnglish · 16 days agoThursday Triumphsplus-squaremessage-squaremessage-square0fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1message-squareThursday Triumphsplus-squareBjörn Tantau@swg-empire.deEnglish · 16 days agomessage-square0fedilink
Melatonin@lemmy.dbzer0.comEnglish · edit-217 days agoIs anyone else experiencing regular Phantosmia, or olfactory hallucination? I smell fresh baked bread, like a nice sourdough loaf, off and on throughout the day.plus-squaremessage-squaremessage-square4fedilinkarrow-up12arrow-down10
arrow-up12arrow-down1message-squareIs anyone else experiencing regular Phantosmia, or olfactory hallucination? I smell fresh baked bread, like a nice sourdough loaf, off and on throughout the day.plus-squareMelatonin@lemmy.dbzer0.comEnglish · edit-217 days agomessage-square4fedilink
Björn Tantau@swg-empire.deEnglish · 23 days agoThursday Triumphsplus-squaremessage-squaremessage-square0fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1message-squareThursday Triumphsplus-squareBjörn Tantau@swg-empire.deEnglish · 23 days agomessage-square0fedilink
MelodiousFunk@slrpnk.netEnglish · 28 days agoSorry, our health care software is only coded to recognize one symptom at a timeplus-squareslrpnk.netexternal-linkmessage-square2fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1external-linkSorry, our health care software is only coded to recognize one symptom at a timeplus-squareslrpnk.netMelodiousFunk@slrpnk.netEnglish · 28 days agomessage-square2fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 29 days agoA woman from Canada with severe ME has been approved for MAiD - but she wants to liveplus-squarewww.thecanary.coexternal-linkmessage-square6fedilinkarrow-up13arrow-down10
arrow-up13arrow-down1external-linkA woman from Canada with severe ME has been approved for MAiD - but she wants to liveplus-squarewww.thecanary.coFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 29 days agomessage-square6fedilink
Björn Tantau@swg-empire.deEnglish · 1 month agoThursday Triumphsplus-squaremessage-squaremessage-square0fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1message-squareThursday Triumphsplus-squareBjörn Tantau@swg-empire.deEnglish · 1 month agomessage-square0fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month ago3 year waiting period, have to hire a lawyer, a million forms to fill out, it's a nightmare!lemmy.blahaj.zoneimagemessage-square1fedilinkarrow-up13arrow-down10
arrow-up13arrow-down1image3 year waiting period, have to hire a lawyer, a million forms to fill out, it's a nightmare!lemmy.blahaj.zoneFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agomessage-square1fedilink
FundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agoHow the Healthcare system fails chronically ill peopleplus-squarewww.whitneydafoe.comexternal-linkmessage-square0fedilinkarrow-up13arrow-down10
arrow-up13arrow-down1external-linkHow the Healthcare system fails chronically ill peopleplus-squarewww.whitneydafoe.comFundMECFSResearch@lemmy.blahaj.zoneMEnglish · 1 month agomessage-square0fedilink
Björn Tantau@swg-empire.deEnglish · 1 month agoThursday Triumphs Friday Festivitiesplus-squaremessage-squaremessage-square0fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1message-squareThursday Triumphs Friday Festivitiesplus-squareBjörn Tantau@swg-empire.deEnglish · 1 month agomessage-square0fedilink
graphito@sopuli.xyzMEnglish · edit-21 month agoLiving Long-Term with Mental lIlness - The School of Life | 4 minsplus-squarewww.youtube.comexternal-linkmessage-square0fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1external-linkLiving Long-Term with Mental lIlness - The School of Life | 4 minsplus-squarewww.youtube.comgraphito@sopuli.xyzMEnglish · edit-21 month agomessage-square0fedilink
jordanlund@lemmy.worldEnglish · 1 month agoI describe it like this...plus-squaremessage-squaremessage-square0fedilinkarrow-up11arrow-down10
arrow-up11arrow-down1message-squareI describe it like this...plus-squarejordanlund@lemmy.worldEnglish · 1 month agomessage-square0fedilink