Thanks, I’ve only known about the chronic fatigue part of ME since the trial I’m involved in also has some ME patients trialing the same meds.

Edit: reading again i think their was a small miscommunication, I don’t have MECFS, just something with similar symptoms so I know the feeling.

Yeah I mean…fatigue sucks. Like, as a symptom caused by the flu or sth. Chronic fatigue has to suck even more, like any acute illness that becomes chronic. And I yes, there is Post Covid type ME/CFS than also goes along with chronic fatigue as well as PME (and other debilitating symptoms such as severe pain etc.,). So not just PME. At least this is the way our specialist frames it/ named it. But maybe there is a translation issue/ language barrier, no native speaker here. Luckily I am just blessed with some rather annoying but mostly livable chronic diseases…but it hit my significant other, so that’s why I asked in the first place about the medication, hoping for some hints about possible options…thank you for your well wishing :-)

I might want to add, "hope that your baseline improves " is a very good way of expressing well wishes to someone where you know that “get well soon” is just not the right way for someone with a chronic disease that doesn’t get much or any better soon!!! Love it, will steal this ^^